Hemophilia Research Today is a free monthly online journal that collates and summarizes the latest research about Hemophilia, including details on genetics, causes, symptoms, blood transfusion.
Recommended Books on Hemophilia
Hemophilia Ninewells Hospital and Medical School, Dundee, U.K. Comprehensive review of the clinical and laboratory aspects of hemophilia. Covers clinical features, treatment, complications, and the psychosocial aspects of the disease. 49 contributors, 22 U.S.
Genetic Disorders Sourcebook: Basic Information About Heritable Diseases and Disorders Such As Down Synd Rome, Pku, Hemophilia, Von Willebrand Disease, ... Tay-Sachs d (Health Reference Series) More than 6,000 human diseases, including Down Syndrome, Hemophilia, and Sickle Cell Disease, have been linked to genetic causes. While some diseases can be managed to allow sufferers to enjoy a near-normal lifestyle, others are invariably fatal. Genetic Disorders Sourcebook is a comprehensive collection of authoritative information presented in a nontechnical, humanitarian style for patients, their families, and caregivers.
36th Hemophilia Symposium Hamburg 2005: Epidemiology; Hemophilia Therapy - Management of Bleedings and Inhibitors; Orthopedic Treatment in Hemophiliacs; ... Pediatric Hemostaseology; Free Lectures This book contains the contribution to the 36th Hemophilia Symposium, Hamburg 2005. The main topics are epidemiolgy, hemophilia therapy, orthopedic treatment in hemophiliacs, hemostaseologic diagnosis and pediatric hemostaseology. The volume is rounded off by numerous free papers and posters on hemophilia, inhibitors in hemophilia and diagnostics.
The Gift of Experience: Conversations About Hemophilia "The Gift of Experience" captures the lives and perspectives of twenty-one men, born with hemophilia, and their caregivers, in ways that other resources have failed to do. In vital and personal stories, their accounts capture the impact of the dramatic advances in the treatment of the disease as well as the challenges of chronic pain and joint damage. The conversations also include discussions of the HIV and hepatitis C infections resulting from the tainted blood supply between the late 1960s and the mid-1980s. Laura Gray and Christine Chamberlain have done a tremendous job weaving these oral histories into a narrative that allows their subjects to speak for themselves. "The Gift of Experience" is a 'must read' for anyone interested in the illness and disability experiences of people with chronic diseases, as well as those with bleeding disorders. "The Gift of Experience" is moving and inspiring, a hopeful account of the human experience.
Edited by two leading orthopedic surgeons who are specialists in the treatment of hemophilia, Orthopedic Surgery in Patients with Hemophilia shows all the surgical techniques needed for surgical treatment of musculoskeletal complications of hemophilia. A practical guide, designed for use on the ward or in the office, this book draws on the experience of numerous specialists worldwide, from developed and developing countries. As well as orthopedic surgery, it also covers research, hematology, and rehabilitation. Although of primary interest to the orthopedic surgeon, rheumatologist, and physiotherapist, this book will also be relevant to the hematologist responsible for the care of the hemophiliac patient.
This book is an invaluable resource that provides an overview of all aspects of the care of patients with haemophilia.
Covering how to assess both bleeding children and adults, Haemophilia A and B, molecular basis of the disease, the role of factors in coagulation, epidemiology, pharmacokinetics, and treatment of inhibitors. There will also be a section on musculoskeletal aspects of haemophilia as well as newer developments such as gene therapy and rare bleeding disorders.
Textbook of Hemophilia is ideal for:
Why Buy This Book?
The only up-to-date definitive reference source on hemophilia
Hemophilia Care in the New Millennium (Advances in Experimental Medicine and Biology) These are the proceedings of the international symposium to honor Dr. Harold R. Roberts, held in Chapel Hill, North Carolina in April of 1999.
Blood Saga: Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface For thousands of years boys known as "bleeders" faced an early, painful death from hemophilia. Dubbed "the Royal Disease" because of its identification with Queen Victoria, the world's most renowned carrier, hemophilia is a genetic disease whose sufferers had little recourse until the mid-twentieth century. In the first book to chronicle the emergence and transformation of the hemophilia community, Susan Resnik sets her story within our national political landscapewhere the disease is also a social, psychological, and economic experience. Blood Saga includes many players and domains: men with hemophilia and their families, medical personnel, science researchers, and the author herself, who was Director of Education of the National Hemophilia Foundation in the early 1980s. At that time the "miracle treatment" of freeze-dried pooled plasma blood products enabled men with hemophilia to lead full, normal lives. Then the AIDS virus infiltrated the treatment system and over fifty percent of the hemophilia community became HIV-positive. But rather than collapsing, this community refocused its priorities, extended its reach, and helped shape blood safety policies to prevent further tragedy. The hemophilia community includes people from every socioeconomic and ethnic group, and Resnik's narrative and use of oral histories never lose touch with those affected by the disease. Her extensive informant interviewing allows much of this social history to be told by participants on all levels: parents, wives, nurses, doctors, government agency directors, health care providers, and many others. Gene insertion therapy now holds the promise of a cure for hemophilia in the near future. Scientific breakthroughs inevitably become intertwined with the industry and academic medical centers that govern the national health care system. And in that system, says Resnik, costs and safety are sometimes contending issues. She makes clear that the lessons learned in Blood Saga apply to all of us.
Hemophilia (Genes and Disease) For many people, bumping into a chair or getting a paper cut means momentary pain, followed by quick healing. But for those with hemophilia, a disease that renders its sufferers unable to clot blood effectively and control hemorrhaging after minor injuries, the healing time can be much more arduous. Resulting from mutations in genes that code for blood proteins necessary for clotting, hemophilia is an ancient, hereditary disease that usually affects males and can be classified as severe, moderate, or mild. "Hemophilia", a detailed and easy-to-read guide filled with informative stories of the disease's history, strives to educate readers about the science of hemophilia, while emphasizing how people with this disease can live full and productive lives. The development and technology behind the evolution of treatments for hemophilia are also discussed.
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