Hemophilia Research - Genetics, Causes, Symptoms, Blood Transfusion

Hemophilia Research Today is a free monthly online journal that collates and summarizes the latest research about Hemophilia, including details on genetics, causes, symptoms, blood transfusion.


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Medical utilization by immunodeficient, hemophiliac, and HIV positive children during summer camp: evidence for a safe camper experience.

Bergman J, Kinsella E, Kenny J, Barbor P, Zeltzer P

David Geffen School of Medicine at UCLA, University of California, Los Angeles, CA, USA.

BACKGROUND: Continuation of normal activities is vital to psychosocial development of children with serious illnesses. The purpose of this study was to determine whether or not it was safe for HIV-positive children and children with other immunodeficiencies to attend camp. PROCEDURE: The study population consisted of HIV (+) children, HIV negative siblings, and other immunodeficient campers attending Barretstown Gang (BG) Camp between 1998 and 2002. Their visit frequency to the on-site medical facility was compared within the study population and between 2,323 contemporaneous campers with cancer. RESULTS: Over half of the HIV (+) children were on active therapy. Greater than 97% of staff (49/51) made at least one visit compared with 64% (149/233) of campers (P < 0.04). HIV (-) siblings had almost the same need for medical attention (total visits) as children with immunodeficiencies (P = 0.34). Most visits [88%] among all diagnostic groups except hemophilia were non-disease related (328 vs. 47). Apart from URIs, there were few other infections and no fevers in the HIV(+) or immunodeficiency group, nor were there significant bleeds in the hemophiliacs. Most visits were for routine camp-type ailments. CONCLUSIONS: Our findings suggest that it is safe for HIV (+) and immunodeficient children to attend a properly staffed camp.

Published 19 September 2005 in Pediatr Blood Cancer, 45(6): 826-30.
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Hemophilia Research Today Archive:

Volume 1 (2005)
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